Table of Contents What Is Scleroderma? What Are the Different Types of Scleroderma? What Causes Scleroderma? Who Gets Scleroderma? How Can Scleroderma Affect My Life? Symptoms of Scleroderma What Other Conditions Can Look Like Scleroderma? Scleroderma Treatment How Can I Play a Role in My Health Care? Scleroderma Research More Questions? Keeping on Top of Your Condition

Who Gets Scleroderma?

Although scleroderma is more common in women, the disease also occurs in men and children. It affects people of all races and ethnic groups. However, there are some patterns by disease type. For example:

• Localized forms of scleroderma are more common in people of European descent than in African Americans.
• Morphea usually appears between the ages of 20 and 40.
• Linear scleroderma usually occurs in children or teenagers.
• Systemic scleroderma, whether limited or diffuse, typically occurs in people from 30 to 50 years old. It affects more women of African American than European descent.
  

Because scleroderma can be hard to diagnose and it overlaps with or resembles other diseases, scientists can only estimate how many cases there actually are. Estimates for the number of people in the United States with systemic sclerosis range from 40,000 to 165,000. By contrast, a survey that included all scleroderma-related disorders, including Raynaud's phenomenon, suggested a number between 250,000 and 992,500.

For some people, scleroderma (particularly the localized forms) is fairly mild and resolves with time. But for others, living with the disease and its effects day to day has a significant impact on their quality of life.